Xander and the Youth@Heart Team are here to support young people, 16-24 (and their families), on their journey as they live with CHD.
Support and information through email, text, WhatsApp and Social Media.
Events to help you learn more about your heart condition.
Help with lifestyle issues including DLA, PIP, education, employment, sports and exercise, sex and relationships, drugs and alcohol
Activities so that you can meet others in a similar situation and have fun!
Putting you in touch with other young people so that you can start to make friends with other people with CHD.
Support if you are an inpatient and at outpatient clinics
We want to help – do get in touch
It was Alice’s transition from children’s to adult care that initiated the Youth@Heart journey
My flair for Youth Work began aged thirteen, when I took over an internet and gaming café in my local village in Somerset. Alongside my best friend Paul, I developed this opportunity into a thriving local project that gave young gamers a place to hang out, play games and do other activities, like paint-balling. It was this and a brief stint as a member of the local Youth Opportunities Fund Panel that really set me on the road for my Youth Work journey.
Following a degree in Youth and Community Development, I have worked in Bristol for the last 5 years running Open Access sessions, undertaking both 1:1 and group work, and supporting NEET Young People find jobs and courses of interest to start their careers.
Since 2008, I have volunteered for Over the Wall at their sibling and summer Health Challenge Camps providing activities for young people affected by health challenges. It is this experience and privilege that has made me want to move my career in the direction of health-based Youth Work!
In my spare time I am busy planning a 2020 wedding, listening to a wide range of music from Rock, Grunge and Pop Punk to Reggae, Dub and even to Drum & Bass, binge watching Netflix shows, going to the cinema or local gigs with my fiancée, or fussing the cat (Astra) that pretty much rules the house.
9 April 1991 - 25 June 2013
Providing a support and information service that reduces the isolation, fear and the lack of understanding experienced by families when a child is diagnosed with having half a working heart.
The Network brings together clinicians, managers, patient/family representatives and commissioners from across the region, who work together to support patients of all ages with a congenital heart condition, and their families/carers.
The Bristol Heart Institute (BHI) is the hub for the regional adult congenital heart service for the South West and South Wales. All invasive cardiology and cardiac surgery for congenital heart disease is undertaken here with some outpatient clinical care provided in partnership with district hospitals in the region.
There are over 250,000 adults who were born with a heart condition (CHD) living in the UK. The Somerville Foundation (previously GUCH Patients Association) exists to create a world where they receive excellent medical care, and lead happy, healthy lives.