[ Are you or someone you know living with CHD? Perhaps we can help [ Look for Coronavirus latest https://www.gov.uk/government/topical-events/coronavirus-covid-19-uk-government-response [ Welcome to Monet Williams our new Community Youth and Family Worker. Find out more about Monet on our Youth Worker page

COViD 19

Life has suddenly become a lot scarier, however we want you to know that we are here for you. Whether you are feeling bored and are in need of something to do or you simply just need someone to talk to, please get in touch with our team, we would love to hear from you and help in any way we can. The quotes below are from other CHD patients about how they are currently feeling:


‘I cannot see Covid-19, I do not know who has it, or where I might get it, but I do know I would be very, very ill if I did.’

I had open heart surgery just before lock down and was sent home – I just do not know who to talk to’

‘I always look so well, people do not understand how ill I really am, and Covid19 is making it worse, because people thinking I’m faking it’

‘ I do not know whether my heart and lungs are strong enough to survive this illness and I am terrified’

‘I’m bored, stuck at home, feeling alone, I can’t see anyone I care about and don’t  know what to do with my time.’ 


We want you to know that you are not alone, there will be others out there feeling exactly the same way.

My Journey

What are Monet and Xander up to?

We are……..

  • on the end of the phone if you have a question or want to chat

  • running virtual activities via Facebook Zoom and Instagram

  • sending out our ‘gift of hugs’

  • checking in with our CHD community to see how people are

  • Zoom catch-ups for young people in hospital across our region

  • offering support to family and friends who may be worried at this time

  • liaising with the BHI to support young people

Find out more about what we do




We are a small charity supporting 16 to 24 year olds with Congenital Heart Disease (CHD) in Gloucestershire South Wales and the South West of England.


More about Xander
Xander and Monet Here to Help
More about Monet
Xander : 07832668907 Monet : 07578399916 Office : 01452690830

Little Hearts Matter 

Providing a support and information service that reduces the isolation, fear and the lack of understanding experienced by families when a child is diagnosed with having half a working heart.

Congenital Heart Disease Network South Wales & South West

The Network brings together clinicians, managers, patient/family representatives and commissioners from across the region, who work together to support patients of all ages with a congenital heart condition, and their families/carers.

Bristol Heart Institute

The Bristol Heart Institute (BHI) is the hub for the regional adult congenital heart service for the South West and South Wales.  All invasive cardiology and cardiac surgery for congenital heart disease is undertaken here with some outpatient clinical care provided in partnership with district hospitals in the region.

The Somerville Foundation 

There are over 250,000 adults who were born with a heart condition (CHD) living in the UK. The Somerville Foundation (previously GUCH Patients Association) exists to create a world where they receive excellent medical care, and lead happy, healthy lives.