Supporting Young People Aged 13-24 with Congenital Heart Disease (CHD)

Youth at Heart are a charity committed to young people aged 13-24, and their families, who are living with Congenital Heart Disease (CHD) in South West England and South Wales.

We empower, inform and support them to live their best life.

About Youth at Heart


We employ a Senior Congenital Heart Disease (CHD) Health Youth Worker and a CHD Health Youth Worker.

Youth at Heart is independent from the NHS but works in partnership with the Bristol Heart Institute and the South Wales & South West Congenital Heart Disease Network.

For young people

We are committed to supporting you as you start your Transition Journey aged 13 and leading up to your Transfer from Paediatrics to Adult Services and beyond, until your 25th birthday.

For the whole family

Youth at Heart recognise that congenital heart disease affects the whole family, which is why our Youth Workers are there for families too.

For professionals

Youth at Heart is a charity independent from the NHS that works in partnership with health professionals across the South Wales & South West Congenital Heart Disease Network.

Get involved

Youth at Heart rely on funds being raised through donations, grants, events and activities and for people to get involved to help us carry on our important work.

10 Years of Youth at Heart

Join us in our 10th Anniversary Year of Youth at Heart and making a difference to the lives of young people (aged 13-24) with Congenital Heart Disease (CHD) and their families.

10 years logo

Latest news & stories

1 in 100

Babies are born with congenital heart disease.

Every 2 hours

A baby is born with a serious heart condition.

90%

Of those born with CHD go on to thrive into adulthood.

Our feedback

"Thank you so much for coming to see me it meant a lot. I’ve been super lonely, and it was nice having someone in that wasn’t here to poke or prod me or ask me questions about my condition."

PB, Young Person

"Thank you so much for your support with J when you came to see him in hospital, it was more help than you can know for both J and myself"

VC, Parent

"Thank you for all the support you have given me over the last few years you've helped me massively and i cannot thank you enough for everything, i'll miss you guys but i will keep you updated on my progression with uni"

GC, Young Person

"Hey, I just wanted to say thank you so much for coming to my appointment. It was really nice and useful having you there. Thank you"

SL, Young Person

"Youth at Heart are experts in what they do, what they can offer and it’s not just about supporting the patient - it’s supporting the family and seeing everyone for who they are not just a diagnosis or procedure"

FW, Parent

"Better understanding of youth culture and skills which enable sharing in a less formal and threatening interaction. The Youth Workers teach us medics/nurses what is cool!"

Consultant Cardiologist