For Young People Aged 13-24

We are committed to supporting you as you start your Transition Journey aged 13 and leading up to your Transfer from Paediatrics to Adult Services and beyond, until your 25th birthday.

Faith and Xander

Our Youth Workers have an ‘honorary contract’ with University Hospitals Bristol & Weston NHS Foundation Trust, which means they have access to the wards and can visit you during hospital stays.

The Youth Workers can attend outpatient appointments so you have someone with you for reassurance, to explain jargon or help you through your appointment.

They can see you outside hospital if you want to chat about school, college, planning for university, benefits, jobs, apprenticeships or anything else you would rather discuss outside of the hospital environment.

If you need to find some useful resources for information for topics like mental health, money, body image, sexual health, we can help with that too!

The Rescue Rucksack (pictured here) is our inpatient engagement and boredom busting tool. As you can see it is full of colouring pages, card games and some board games.

Each young person we see is asked to pick a sew on patch that adds some of your personality to the bag. It used to be a grey rucksack (left picture) but has now grown into the orange bag you see in the picture on the right.

We will be transferring all the original patches over to the new orange bag. In the meantime the youth workers still use the grey rucksack as a work bag, so wherever they go, you all go too!

Rescue Rucksack
Rescue Rucksack upgrade
"Youth at Hearts Youth Worker has been an amazing asset to my overall recovery. I have always felt that he goes over and above. When talking to them, I can ask questions and suggestions that I am not sure how to put into words or feel too old to ask a 'silly question'.

I do wish I had had the support of someone like them when I was younger, especially in my transitionally years. I feel by having them to talk to now, it is definitely aiding my acceptance of transition and healing some trauma from not receiving it when I needed it but I think it is a fundamental part of growing up with a heart condition, to have someone to help you along the way, who isn't a family member whom you let take control. It is important to understand your own heart condition and understand the risks, especially as a teenager with someone like them who is independent but 'on your side'."

PB, Young Person

Explore Youth at Heart

Youth at Heart are a charity committed to young people aged 13-24, and their families, who are living with Congenital Heart Disease (CHD) in South West England and South Wales.

We empower, inform and support them to live their best life.

For the whole family

Youth at Heart recognise that congenital heart disease affects the whole family, which is why our Youth Workers are there for families too.

For professionals

Youth at Heart is a charity independent from the NHS that works in partnership with health professionals across the South Wales & South West Congenital Heart Disease Network.

Get involved

Youth at Heart rely on funds being raised through donations, grants, events and activities and for people to get involved to help us carry on our important work.

Our feedback

"Thank you so much for coming to see me it meant a lot. I’ve been super lonely, and it was nice having someone in that wasn’t here to poke or prod me or ask me questions about my condition."

PB, Young Person

"Thank you so much for your support with J when you came to see him in hospital, it was more help than you can know for both J and myself"

VC, Parent

"Thank you for all the support you have given me over the last few years you've helped me massively and i cannot thank you enough for everything, i'll miss you guys but i will keep you updated on my progression with uni"

GC, Young Person

"Hey, I just wanted to say thank you so much for coming to my appointment. It was really nice and useful having you there. Thank you"

SL, Young Person

"Youth at Heart are experts in what they do, what they can offer and it’s not just about supporting the patient - it’s supporting the family and seeing everyone for who they are not just a diagnosis or procedure"

FW, Parent

"Better understanding of youth culture and skills which enable sharing in a less formal and threatening interaction. The Youth Workers teach us medics/nurses what is cool!"

Consultant Cardiologist